About
Join us in this engaging online course designed for caregivers, families, and advocates of rare diseases. This course will take you through essential knowledge and practical skills to effectively support individuals affected by rare diseases, particularly focusing on Pompe disease. You will learn about the scientific fundamentals of rare diseases, understand the emotional and social challenges patients face, and explore ways to raise awareness and funds to support affected families. Each section is packed with resources and actionable steps to help you connect with your community and make a meaningful impact. By the end of this course, participants will be equipped with both knowledge and practical tools to support the rare disease community effectively.
You can also join this program via the mobile app. Go to the app